Hi, Im Ebony
Hi, I'm Ebony Clemmons. I live in Chicago with my wonderful husband, Nick, and my adorable son, Darius (even though he hates being called adorable). My preacher pointed me in your direction because I'm dealing with a genetic fatal disorder called Huntington's disease and I didn't know where to turn. I've seen a genetics counselor, but it's the fear and the emotional stuff that's hard to handle. People with this disease have a 50% chance of passing it on to their children. We got Darius tested at 18 years old and I was absolutely heartbroken to learn that he would not be spared. I didn't put my child at risk on purpose! My brother and I were adopted and had no knowledge about our possible genetic health as it was a closed adoption. My brother started having symptoms which eventually prompted him to see some specialists. He thought it would turn out to be something simple to fix, but got the news that he had HD instead. That's what prompted me to get tested.
This disease has changed my entire outlook on life. I used to be staunchly pro-life feeling that abortion was morally wrong. That changed when I learned that I passed Huntington's disease on to my child. I'm not certain whether termination of the pregnancy would be the more merciful choice, but I now understand why some women make that choice when they learn their child will be born with a debilitating disease. Sometimes people judge me for having a child when they don't know my whole story so I decided to be proactive here as I hope to settle into your online community.